About PMSS |
The Polish Multiple Sclerosis Society (PTSR) is the only all-Polish non-governmental organisation of people living with multiple sclerosis, their families and friends. The society was founded in 1990 and obtained a status of a public benefit organisation in 2004. It associates about 6 thousand members in more than 22 divisions all over Poland and cooperates with local organisations engaged in helping disabled people as well as associations of people living with MS in Europe and other continents. As PTSR is a member of the European Multiple Sclerosis Platform and the Multiple Sclerosis International Federation, it represents Polish people living with MS on the international forum. The Polish Multiple Sclerosis Society works to improve quality of life of about 60 thousand patients and their families, as well as improve access to the state-of-the-art therapies and comprehensive solutions in the sphere of rehabilitation, to help Polish people living with MS lead decent life. The organisation initated introduction of the National MS Program (NPL) in order to improve situation of people living with MS in Poland, quality of their lives, awareness about state-of-the-art and quality procedures on MS among neurologists as well as to establish the Central Register of People living with MS. NPL has been prepared based on the up-to-date scientific knowledge as well as experience and best practices in MS treatment in other countries. The program was elaborated by internationally recognised experts specialised in multiple sclerosis. It is a comprehensive system for treatment and rehabilitation of people living with MS. The latest version of the National MS Program was handed over to the Minister of Health in July 2005. Until today, no binding decision has been taken concerning adopting and implementing the program. On behalf of people living with MS the Polish Multiple Sclerosis Association also undertakes activites on the European scale: in October 2007 PTSR initiated "Days of MS in the European Parliament" dedicated to the situation of Polish MS patients. The Chairperson of the Association submitted the petition on discrimination of Polish people living with MS to the Parliament. The petition was accepted by the Parliament as substantial and is being currently considered. |